The Gulf Coast CF care at Nemours Children's
Clinic in Pensalcola headed by Dr. Kevin Maupin
http://www.nemours.org/internet?url=no/ncc/svcs/div763.html
Local Medical Supply - Fort Walton Beach Med Plus
http://www.fwbmedplus.com
The vest airway clearance system
http://www.thevest.com
Nebulizers and compressors - you should be using
Pari ONLY - ask your CF care specialist
http://www.pari.com
CF and nutrition for kids
http://kidshealth.org/parent/nutrition_fit/nutrition
/cf_nutrition.html
High calorie CF recipes
http://kidshealth.org/parent/recipes/cf_recipes/
about_cf_recipes.html
Info on Chest PT
http://www.cystic-l.org/handbook/html/physical_
therapy.htm
Other equipment and products for CF patients
http://www.sourcecf.com
Information from the CF Foundation on equipment
cleaning to reduce the chances of psuedamonas
& other bugs very important read for anyone who
has a loved one with CFs
http://www.cff.org/uploadedFiles/living_with_cf/Files/
Respiratory -- Stopping%the Spread of Germs.pdf
Cystic Fibrosis Foundation brochure on the
different CF bugs and how to avoid them
there are 7
http://www.cff.org/uploadedFiles/publications
/files/Respiratory%20%20What20%You20%
Should20%know20%About20%Germs.pdf
CF Drugs
Pulmozyne
http://www.pulmozyme.com
Tobramycin (TOBI)
http://www.abouttobi.com
Ultrase and ADEK's and their patient programs
http://www.axcan.com/programsultrase.php?lang=1
Vitamax vitamins
http://www.cfservicespharmacy.com/Home/
Xopenex
http://www.xopenex.com
Clinical trails
http://www.air-cf.com
About genetic testing for CF
http://www.dnadirect.com
Vital CF Info - Links -
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