| This website was created to provide information about all events related to Cystic Fibrosis on the |
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When my daughter was first diagnosed with cystic fibrosis 5 years ago there was very little awareness about CF in our area, in fact our family had not even heard the words Cystic Fibrosis. Since the positive diagnosis, we have learned all about Cystic Fibrosis and what it can do to our little girl. For this reason it has been our goal to raise as much money as possible for the CF Foundation to find a cure. The money that the CF Foundation puts into research truly makes a difference. |
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When the CF Foundation was established by a group of parents 50 years ago the average age for a child to live who was born with CF was only 5 years. Today, thanks to medications and treatments that have been developed, the median age is 36 years. I am so grateful to those parents for their initiative and belief that they had the power for change. Because of those parents who established the foundation, my daughter and other children like her have a fighting chance at life. Make no mistake, though the median age has risen there are still children dying of this disease. We can not stop until a cure is found. |
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Along our journey we have met many wonderful families who also have children with CF and like us are working hard for a cure. It is my belief like those initial parents who started the CF Foundation that together we can also make positive change in our area.
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We have established several fundraising events in the past 3 years to raise money for a cure. Information about these fundraisers are listed in the menu at the left. Please see what you can do to help us find a cure! |
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